Introducing the CARE Principles:
As open science practices become more widely adopted, conversations about data governance have also broadened beyond questions about technical standards and infrastructure. Increasingly, researchers, institutions, and communities want to know: Who data serves? Who benefits? Who has authority over its use, especially where knowledge and data concern Indigenous Peoples?
The provide an essential framework to address these questions and engage with the concepts of collective benefit, authority to control, responsibility, and ethics of data governance involving Indigenous and marginalised communities.
The principles complement the FAIR principles (findable, accessible, interoperable, reusable), encouraging open and other data movements to consider both people and purpose in their advocacy and pursuits.
The ‘CARE Principles for Indigenous Data Governance’ empower Indigenous Peoples by shifting the focus from regulated consultation to value-based relationships that position data approaches within Indigenous cultures and knowledge systems to the benefit of Indigenous Peoples. This shift ultimately promotes equitable participation in processes of data reuse, which will result in more equitable outcomes.
(Carroll et al.)
What are the CARE Principles?
The CARE Principles are summarised as follows (for citation purposes, please refer to the Global Indigenous Data Alliance’s Overview of the CARE Principles, ).
What are the CARE Principles
Data ecosystems shall be designed and function in ways that enable Indigenous Peoples to derive benefit from the data.
C1. For inclusive development and innovation
Governments and institutions must actively support the use and reuse of data by Indigenous nations and communities by facilitating the establishment of the foundations for Indigenous innovation, value generation, and the promotion of local self-determined development processes.
C2. For improved governance and citizen engagement
Data enrich the planning, implementation, and evaluation processes that support the service and policy needs of Indigenous communities. Data also enable better engagement between citizens, institutions, and governments to improve decision-making. Ethical use of open data has the capacity to improve transparency and decision-making by providing Indigenous nations and communities with a better understanding of their peoples, territories, and resources. It similarly can provide greater insight into third-party policies and programs affecting Indigenous Peoples.
C3. For equitable outcomes
Indigenous data are grounded in community values, which extend to society at large. Any value created from Indigenous data should benefit Indigenous communities in an equitable manner and contribute to Indigenous aspirations for wellbeing.
Indigenous Peoples’ rights and interests in Indigenous data must be recognised and their authority to control such data be empowered. Indigenous data governance enables Indigenous Peoples and governing bodies to determine how Indigenous Peoples, as well as Indigenous lands, territories, resources, knowledges and geographical indicators, are represented and identified within data.
A1. For recognising rights and interests
Indigenous Peoples have rights and interests in both Indigenous Knowledge and Indigenous data. Indigenous Peoples have collective and individual rights to free, prior, and informed consent in the collection and use of such data, including the development of data policies and protocols for collection.
A2. For data for governance
Indigenous Peoples have the right to data that are relevant to their world views and empower self-determination and effective self-governance. Indigenous data must be made available and accessible to Indigenous nations and communities in order to support Indigenous governance.
A3. For governance of data
Indigenous Peoples have the right to develop cultural governance protocols for Indigenous data and be active leaders in the stewardship of, and access to, Indigenous data especially in the context of Indigenous Knowledge.
Those working with Indigenous data have a responsibility to share how those data are used to support Indigenous Peoples’ self-determination and collective benefit. Accountability requires meaningful and openly available evidence of these efforts and the benefits accruing to Indigenous Peoples.
R1. For positive relationships
Indigenous data use is unviable unless linked to relationships built on respect, reciprocity, trust, and mutual understanding, as defined by the Indigenous Peoples to whom those data relate. Those working with Indigenous data are responsible for ensuring that the creation, interpretation, and use of those data uphold, or are respectful of, the dignity of Indigenous nations and communities.
R2. For expanding capability and capacity
Use of Indigenous data invokes a reciprocal responsibility to enhance data literacy within Indigenous communities and to support the development of an Indigenous data workforce and digital infrastructure to enable the creation, collection, management, security, governance, and application of data.
R3. For Indigenous languages and worldviews
Resources must be provided to generate data grounded in the languages, worldviews, and lived experiences (including values and principles) of Indigenous Peoples.
Indigenous Peoples’ rights and wellbeing should be the primary concern at all stages of the data life cycle and across the data ecosystem.
E1. For minimising harm and maximising benefit
Ethical data are data that do not stigmatise or portray Indigenous Peoples, cultures, or knowledges in terms of deficit. Ethical data are collected and used in ways that align with Indigenous ethical frameworks and with rights affirmed in UNDRIP. Assessing ethical benefits and harms should be done from the perspective of the Indigenous Peoples, nations, or communities to whom the data relate.
E2. For justice
Ethical processes address imbalances in power, resources, and how these affect the expression of Indigenous rights and human rights. Ethical processes must include representation from relevant Indigenous communities.
E3. For future use
Data governance should take into account the potential future use and future harm based on ethical frameworks grounded in the values and principles of the relevant Indigenous community. Metadata should acknowledge the provenance and purpose and any limitations or obligations in secondary use inclusive of issues of consent.
Who should use the CARE principles?
Imperial works with over 10,000 partner institutions across 192 countries.
Any research staff or ÌìÃÀ´«Ã½ involved in generating, managing, storing or archiving Indigenous data should be aware of and follow the CARE principles.
Source:
Carroll, S.R., Garba, I., Figueroa-Rodríguez, O.L., Holbrook, J., Lovett, R., Materechera, S., Parsons, M., Raseroka, K., Rodriguez-Lonebear, D., Rowe, R., Sara, R., Walker, J.D., Anderson, J. and Hudson, M. (2020) ‘The CARE Principles for Indigenous Data Governance’, Data Science Journal, 19(1), p. 43. Available at: .
Useful resources:
- CARE Principles:
- FAIR Principles:
- Local Contexts website:
- UNESCO Recommendation on Open Science:
This webpage is adapted from a longer form written as part of LoveDataWeek 2026.